- What personally identifiable information we collect from you through the Websites,
- how the information is used,
- with whom the information may be shared,
- what choices are available to you regarding collection, use and distribution of the information,
- the kind of procedures we employ in an effort to hinder the unauthorized access, use or disclosure of information you provide to us,
- information related to third-party websites,
- how you can learn about changes to our privacy policies, practices and procedures.
THE INFORMATION WE COLLECT
Personal Information You Provide and How It Is Used: When you visit our Websites, you may provide us with personally identifying information (such as name, address, e-mail address, telephone number, and/or credit/debit card information) and other information on a voluntary basis, as more particularly described below. We do not knowingly collect sensitive information, such as Social Security numbers. Please do not send sensitive, personal or confidential information to us directly through the Websites, or by email to any of the contact email addresses listed on the Websites.
Publications: You may order certain print publications through the Websites by providing your name and mailing address, and optionally providing your email address. We will use this information to send you the requested publications. We will also add your contact information to our mailing list. You may opt out of receiving future communications from us at any time by clicking the “Unsubscribe” link in any of our emails.
Ask the Doctor: When you use the “Ask the Doctor” feature, you will be asked to provide your email address, as well as your question. Our staff healthcare professionals will only use this information to respond to your questions, and we do not store this information for longer than necessary to respond to your question. This information will be destroyed after the question has been answered and is only seen by our Scientific & Medical Affairs assistant. Any questions or concerns regarding your information may be sent to [email protected] Please note that our staff healthcare professionals cannot recommend treatment or make diagnoses, but can respond to general questions. We ask you not to transmit your own, or another person’s, sensitive or personal health information through this feature to us, and we encourage you to direct any specific questions to your personal physician.
Event Registration: When you RSVP for certain events on the Websites, you will be asked to provide your name and email address, and will be provided with the option to provide your company name, mailing address, and your guest’s first and last name. We will use this information to confirm your RSVP and communicate with you regarding your attendance at the event.
Sweepstakes/Promotions: If you choose to participate in a sweepstakes or other promotion (“Promotions”) offered through the Websites, we may collect additional personally identifying information from you, which will be used to manage your participation in our Promotions, and may be shared with third parties, including Promotion sponsors or partners.
Mailing Lists: When you register an account, make a contribution, or take certain other actions on the Websites, you will be added to our mailing list to receive occasional email updates, unless you choose to opt-out by unchecking the box next to the words “Please send me e-updates with the latest information on Parkinson's Disease.” You may also sign up independently to join our mailing list, and we will ask you provide your email address and your name. If at any time you would like to unsubscribe from our email list, you may do so by clicking on the “unsubscribe” link located at the bottom of all our mass emails or by emailing [email protected] with "unsubscribe" in the subject heading and we will remove your name from our lists. We will act quickly to implement such requests but please note there may be time lags of up to a month to remove names from our database.
Blogs/Social Media: We provide the ability for you to comment on our blogs and on other portions of the Websites. In order to leave a comment on one of our blogs or on other portions of the Websites, you will be required to provide your name and email address, and you will have the option to provide additional personally identifying information. We also provide the option for you to connect with us through various social media outlets and platforms, and we may promote your activities on social media by “retweeting” or “sharing” content that you choose to make available to us.
Personal and Non-Personal Information We Collect by Automated Means And How We Use It:
APDA and third parties with whom we have contracted to provide services for us collect certain personal and non-personal information by automated means when you visit the Websites, including when you access the Websites via a mobile device. We collect this information through various means such as "cookies," "web beacons" and IP addresses, as further explained below.
Personal information collected may include your device’s phone number, and your location information, such as the real-time geographic location of the device you use to access the Websites.
Non-personal information we collect may include the numbers and frequency of visitors to the Websites, pages visited and similar data, information about the devices our visitors use to access the Internet (such as the IP address and the device, browser and operating system type), URLs that refer users to our Website, dates and times of visits to our Website, actions taken on our Website (such as page views and site navigation patterns), general geographic locations (such as country and city) of our visitors, and, search terms that visitors use to reach our Website. If gathered, this data is used in the aggregate, and not in a manner that is intended to identify you personally. This type of aggregate information may be shared with third parties at any time.
We may use information collected by automated means to tailor our products and services to suit your personal interests and the manner in which visitors use our Website, to operate, evaluate and improve our business and the products and services we offer, to analyze and enhance our marketing communications and strategies (including by identifying when emails sent to you have been received and read), to analyze trends and statistics regarding visitors’ use of our sites, mobile applications and social media assets, and the contributions or purchases visitors make on our sites, to protect against and prevent fraud, unauthorized transactions, claims and other liabilities, and manage risk exposure, including by identifying potential hackers and other unauthorized users, and to enforce the User Agreement for our Websites.
Web Beacons: Certain pages on the Websites contain "web beacons" (also known as Internet tags, pixel tags and clear GIFs). These web beacons allow third parties to obtain information such as the IP address of the computer that downloaded the page on which the beacon appears, the URL of the page on which the beacon appears, the time the page containing the beacon was viewed, the type of browser used to view the page, and the information in cookies set by the third party. Web beacons also may be used to track whether you have opened an HTML email. When the email is opened, a part of the code that makes up the HTML page calls a web server to load the web beacon that then generates a record showing that the email has been viewed. Web beacons may also recognize when the email was opened, how many times it was forwarded and which URLs (links within the email) were clicked.
IP Addresses: When you visit and interact with the Websites, APDA and third parties with whom we have contracted to provide services for us may collect Internet Protocol addresses (each an "IP Address"), as well as browser type, Internet service provider (ISP), referring/exit pages, platform type, date/time stamp, and page navigation. An IP Address is a unique identifier number that certain electronic devices use to identify and to communicate with each other on the Internet; your Internet Service Provider automatically assigns an IP Address to the computer that you are using. We gather this information to track web site visitor movement in the aggregate, and to gather broad demographic information for aggregate use. Our goal in gathering this information is to learn how our customers and the public are using our service. We may use this information to enhance our Website or for other lawful purposes.
HOW WE MAY SHARE YOUR INFORMATION
Unless otherwise stated herein, we do not reveal personally identifiable information about you to third parties for their independent use unless: (1) you expressly authorize APDA or an APDA affiliate to do so, (2) it is necessary to allow APDA and its service providers or agents, including but not limited to, our third-party payment processors, to provide services on APDA’s behalf, (3) it is necessary in order to provide products or services to you, (4) the information is disclosed to entities that perform marketing or data aggregation services for APDA, (5) it is necessary in connection with a sale of all or substantially all of the assets of APDA or the merger of APDA into another entity or any consolidation, share exchange, combination, reorganization, or like transaction in which APDA is not the survivor, (6) APDA is required or permitted to do so for any or all of the following reasons: (i) to comply with a subpoena, legal process, government request or any other legal obligation, (ii) to prevent, investigate, detect, or prosecute criminal offenses or attacks on the technical integrity of the Websites or our network, and/or (iii) to protect the rights, privacy, property, business, or safety of APDA, its affiliates, subsidiaries, partners, directors, officers, employees, or members, visitors to the Websites, or the general public.
HOW WE ATTEMPT TO SAFEGUARD YOUR INFORMATION
We do not knowingly collect, use, or disclose personally identifiable information about visitors younger than 13 years of age. If you are under the age of 13, you are expressly prohibited from accessing/viewing the Websites. If you are the parent or guardian of a child under 13 years of age and believe that they have disclosed personally identifiable information to us, please contact us at [email protected] so that we may delete your child’s information.
THIRD PARTY WEBSITES
We may provide links to third-party websites as a service to you or in order to provide you additional information related to the transactions and activities that occur on the Websites. Please be aware that we cannot control and are not responsible for the information collection, use, and disclosure practices of such websites. We encourage you to review and understand the privacy practices and policies, if any, of these websites before providing any personally identifying information to them. We are not responsible for the content or information of these websites, any products or services that may be offered through these websites, or any other use of the linked websites.
Notice to California Residents: California Civil Code Section 1798.83 permits Website users who are California residents to request and obtain from us once a year, free of charge, information about the personal information (if any) we disclosed to third parties for direct marketing purposes in the preceding calendar year. If applicable, this information would include a list of the categories of personal information that was shared and the names and addresses of all third parties with which we shared information in the immediately preceding calendar year. If you are a California resident and would like to request this information, please contact us or write to us at [email protected].
Do Not Track Notice: Some web browsers incorporate a “Do Not Track” feature that signals to websites that you visit that you do not want to have your online activity tracked. How browsers communicate and respond to the Do Not Track signal is not yet uniform. For this reason, like many web websites, the Websites do not currently respond to or alter their practices in response to a Do Not Track signal. Please note that third parties may collect personal information about your online activities over time and across different websites when you visit our Websites or other online websites and services. To find out more about "Do Not Track," you may wish to visit http://www.allaboutdnt.com.
HOW TO CONTACT US
American Parkinson Disease Association
135 Parkinson Avenue
Staten Island, New York 10305