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American Parkinson’s Disease Association (“APDA,” “we” or “us” or “our”), understands your concerns about privacy and how your information is used and safeguarded, and we want to provide you with more information on these topics.  This Privacy Policy describes the practices, policies and procedures related to the websites located at all APDA websites (collectively the “Websites”), including the types of personal information we collect on the Websites, how we may use that information, with whom we share it, and the choices you have regarding our collection, use and disclosure of your information. Please note that this Privacy Policy applies only to our online information-gathering and dissemination practices, and does not apply to any of our practices conducted offline.   By visiting the Websites, you are accepting the practices, policies and procedures described herein, and you are further indicating that you agree to be bound by the terms of this Privacy Policy. If you do not agree to the terms of this Privacy Policy, please do not visit or use the Websites. We may update this Policy from time to time, so please check this Policy periodically for changes. If you have any questions about this Privacy Policy, please do not hesitate to contact us, at [email protected].




The notifications provided by this Privacy Policy include:


  • What personally identifiable information we collect from you through the Websites,
  • how the information is used,
  • with whom the information may be shared,
  • what choices are available to you regarding collection, use and distribution of the information,
  • the kind of procedures we employ in an effort to hinder the unauthorized access, use or disclosure of information you provide to us,
  • information related to third-party websites,
  • how you can learn about changes to our privacy policies, practices and procedures.




Personal Information You Provide and How It Is Used: When you visit our Websites, you may provide us with personally identifying information (such as name, address, e-mail address, telephone number, and/or credit/debit card information) and other information on a voluntary basis, as more particularly described below. We do not knowingly collect sensitive information, such as Social Security numbers. Please do not send sensitive, personal or confidential information to us directly through the Websites, or by email to any of the contact email addresses listed on the Websites.


Processing of Payment Transactions, General Donations: In order to process contributions and purchase transactions made through and charge your credit card, our third-party payment processor, Salsa Labs, requires that you provide certain personal information.  Such information includes your name, billing address, email and credit card information. ADPA is not affiliated with Salsa Labs, and is not responsible for Salsa Labs’ privacy practices or procedures. Salsa Labs has informed us that it takes various precautions to protect your information, which may include use of the Payment Card Industry (PCI) Data Security Standard (DSS), and that Salsa Labs has implemented procedures to ensure that it is in compliance with the PCI-DSS, currently available at Additionally, Salsa Labs has informed us that it also undergoes annual recertification to achieve PCI Level 1 status. While APDA does not store your credit card information, some or all of the information you provide may be retained by Salsa Labs for a period of time. Any information that you provide in conjunction with, or related to, a contribution transaction, will be treated in accordance with Salsa Lab’s privacy policy, located at, and we recommend that you review this policy for additional information.


Processing of Payment Transactions, Chapters: Certain APDA chapters may accept donations directly through their chapter-specific websites. In order to process your contribution to a chapter and charge your credit card, you will be required to provide certain information to QGive, which processes chapter contributions.  Such information includes your name, billing address, email and credit card information. ADPA is not affiliated with QGive, and is not responsible for QGive’s privacy practices or procedures. While APDA does not store your credit card information, some or all of the information you provide may be retained by QGive for a period of time. Any information that you provide in conjunction with, or related to, a contribution transaction, will be treated in accordance with QGive’s privacy policy, located at, and we recommend that you review this policy for additional information.


Fundraising Events: The Websites provide you with the ability to host online fundraising campaigns, to join fundraising campaigns started by others as a participant, and to make a contribution in support of a participant’s fundraising efforts, powered by the Donor Drive peer-to-peer fundraising platform. When you host an online fundraising campaign or join an existing campaign, you will be asked to provide certain personally identifying information, including your name, email address, mailing address, and phone number, as well as any other information that you voluntarily provide in connection with the creation of your campaign or your registration. When you make a contribution to support a participant’s fundraising efforts, Donor Drive requires that you provide certain personally identifying information, including your name, billing address, email address and credit card information, so that Donor Drive may process your contribution through its payment processor. ADPA is not affiliated with Donor Drive, and is not responsible for Donor Drive’s privacy practices or procedures. Some or all of the information you provide to Donor Drive may be retained by Donor Drive, or by Donor Drive’s payment processor for a period of time. Any information that you provide through the Donor Drive peer-to-peer fundraising platform will be treated in accordance with Donor Drive’s privacy policy and practices. For more information, please see Donor Drive’s privacy policy, located at


Publications: You may order certain print publications through the Websites by providing your name and mailing address, and optionally providing your email address. We will use this information to send you the requested publications. We will also add your contact information to our mailing list. You may opt out of receiving future communications from us at any time by clicking the “Unsubscribe” link in any of our emails.


Ask the Doctor: When you use the “Ask the Doctor” feature, you will be asked to provide your email address, as well as your question. Our staff healthcare professionals will only use this information to respond to your questions, and we do not store this information for longer than necessary to respond to your question. This information will be destroyed after the question has been answered and is only seen by our Scientific & Medical Affairs assistant. Any questions or concerns regarding your information may be sent to [email protected] Please note that our staff healthcare professionals cannot recommend treatment or make diagnoses, but can respond to general questions. We ask you not to transmit your own, or another person’s, sensitive or personal health information through this feature to us, and we encourage you to direct any specific questions to your personal physician.


Event Registration: When you RSVP for certain events on the Websites, you will be asked to provide your name and email address, and will be provided with the option to provide your company name, mailing address, and your guest’s first and last name. We will use this information to confirm your RSVP and communicate with you regarding your attendance at the event.


Sweepstakes/Promotions: If you choose to participate in a sweepstakes or other promotion (“Promotions”) offered through the Websites, we may collect additional personally identifying information from you, which will be used to manage your participation in our Promotions, and may be shared with third parties, including Promotion sponsors or partners.


Mailing Lists: When you register an account, make a contribution, or take certain other actions on the Websites, you will be added to our mailing list to receive occasional email updates, unless you choose to opt-out by unchecking the box next to the words “Please send me e-updates with the latest information on Parkinson's Disease.” You may also sign up independently to join our mailing list, and we will ask you provide your email address and your name. If at any time you would like to unsubscribe from our email list, you may do so by clicking on the “unsubscribe” link located at the bottom of all our mass emails or by emailing [email protected] with "unsubscribe" in the subject heading and we will remove your name from our lists. We will act quickly to implement such requests but please note there may be time lags of up to a month to remove names from our database.


Blogs/Social Media: We provide the ability for you to comment on our blogs and on other portions of the Websites.  In order to leave a comment on one of our blogs or on other portions of the Websites, you will be required to provide your name and email address, and you will have the option to provide additional personally identifying information. We also provide the option for you to connect with us through various social media outlets and platforms, and we may promote your activities on social media by “retweeting” or “sharing” content that you choose to make available to us.


Personal and Non-Personal Information We Collect by Automated Means And How We Use It:


APDA and third parties with whom we have contracted to provide services for us collect certain personal and non-personal information by automated means when you visit the Websites, including when you access the Websites via a mobile device. We collect this information through various means such as "cookies," "web beacons" and IP addresses, as further explained below.


Personal information collected may include your device’s phone number, and your location information, such as the real-time geographic location of the device you use to access the Websites.


Non-personal information we collect may include the numbers and frequency of visitors to the Websites, pages visited and similar data, information about the devices our visitors use to access the Internet (such as the IP address and the device, browser and operating system type), URLs that refer users to our Website, dates and times of visits to our Website, actions taken on our Website (such as page views and site navigation patterns), general geographic locations (such as country and city) of our visitors, and, search terms that visitors use to reach our Website. If gathered, this data is used in the aggregate, and not in a manner that is intended to identify you personally. This type of aggregate information may be shared with third parties at any time.


We may use information collected by automated means to tailor our products and services to suit your personal interests and the manner in which visitors use our Website, to operate, evaluate and improve our business and the products and services we offer, to analyze and enhance our marketing communications and strategies (including by identifying when emails sent to you have been received and read), to analyze trends and statistics regarding visitors’ use of our sites, mobile applications and social media assets, and the contributions or purchases visitors make on our sites, to protect against and prevent fraud, unauthorized transactions, claims and other liabilities, and manage risk exposure, including by identifying potential hackers and other unauthorized users, and to enforce the User Agreement for our Websites.


Cookies: A cookie is a piece of information that a web server may place on your computer when you visit a website. Cookies are commonly used by websites to improve the user experience.  Many cookies last only through a single website session, or visit. Others may have an expiration date, or may remain on your computer until you delete them. APDA uses "session cookies" so that we can properly verify a user's identity as they move from one page to the next, including hotel microsites and charity pages. We may also use cookies for other purposes, such as to identify and authenticate visitors, to maintain continuity during a user session, to gather data about the usage of our website for research and other purposes, or to store a user name or encrypted identification number so that you do not have to provide this information every time you return to our Websites.  


Most browsers will tell you how to stop accepting new cookies, how to be notified when you receive a new cookie, and how to disable existing cookies. Please note, however, that without cookies you may not be able to take full advantage of all the features on our Websites. Our cookies do not gather personally identifiable information. In some cases, APDA may also use another company to operate web servers for our Websites.  APDA uses the cookie information gathered by these companies in the same manner as stated in this Privacy Policy.


Web Beacons: Certain pages on the Websites contain "web beacons" (also known as Internet tags, pixel tags and clear GIFs). These web beacons allow third parties to obtain information such as the IP address of the computer that downloaded the page on which the beacon appears, the URL of the page on which the beacon appears, the time the page containing the beacon was viewed, the type of browser used to view the page, and the information in cookies set by the third party. Web beacons also may be used to track whether you have opened an HTML email. When the email is opened, a part of the code that makes up the HTML page calls a web server to load the web beacon that then generates a record showing that the email has been viewed. Web beacons may also recognize when the email was opened, how many times it was forwarded and which URLs (links within the email) were clicked.


IP Addresses: When you visit and interact with the Websites, APDA and third parties with whom we have contracted to provide services for us may collect Internet Protocol addresses (each an "IP Address"), as well as browser type, Internet service provider (ISP), referring/exit pages, platform type, date/time stamp, and page navigation. An IP Address is a unique identifier number that certain electronic devices use to identify and to communicate with each other on the Internet; your Internet Service Provider automatically assigns an IP Address to the computer that you are using.  We gather this information to track web site visitor movement in the aggregate, and to gather broad demographic information for aggregate use. Our goal in gathering this information is to learn how our customers and the public are using our service. We may use this information to enhance our Website or for other lawful purposes.



We may disclose all of the information (described herein) that we collect, as stated in this Privacy Policy, including in accordance with the terms set forth in this section.  Please note that like many organizations, we use specialist service providers to help run parts of our operations. For example, we contract with Google to provide marketing and data aggregation and analysis services and with Salsa Labs and Donor Drive to provide payment processing services. From time to time, these third-party service providers may require access to our database, which may contain personally identifying information belonging to visitors to our Websites. Our agreements with our third-party service providers require that they keep this information confidential.


Unless otherwise stated herein, we do not reveal personally identifiable information about you to third parties for their independent use unless: (1) you expressly authorize APDA or an APDA affiliate to do so, (2) it is necessary to allow APDA and its service providers or agents, including but not limited to, our third-party payment processors, to provide services on APDA’s behalf, (3) it is necessary in order to provide products or services to you, (4) the information is disclosed to entities that perform marketing or data aggregation services for APDA, (5) it is necessary in connection with a sale of all or substantially all of the assets of APDA or the merger of APDA into another entity or any consolidation, share exchange, combination, reorganization, or like transaction in which APDA is not the survivor, (6) APDA is required or permitted to do so for any or all of the following reasons: (i) to comply with a subpoena, legal process, government request or any other legal obligation, (ii) to prevent, investigate, detect, or prosecute criminal offenses or attacks on the technical integrity of the Websites or our network, and/or (iii) to protect the rights, privacy, property, business, or safety of APDA, its affiliates, subsidiaries, partners, directors, officers, employees, or members, visitors to the Websites, or the general public.



We maintain administrative, technical and physical safeguards for the Websites designed to protect against loss, misuse or unauthorized access, disclosure, alteration or destruction of the personal information that we collect from you. For example, we use Secure Sockets Layer encryption to protect certain transaction information while in transit. We also restrict access to personal information collected about you on the Websites to our employees, those who are otherwise specified in this Privacy Policy, or others who need to know that information to provide services to you or in the course of conducting our business operations or activities.  However, no website can guarantee security. Thus, while we have established and maintain what we believe to be reasonable procedures to protect the confidentiality, security, and integrity of personally identifying information obtained through the Websites and we strive to protect your personal information, we cannot ensure or warrant the security of any information you transmit to us. Therefore, you understand, acknowledge, and agree that you transmit certain personal information over the Websites at your own risk.



We do not knowingly collect, use, or disclose personally identifiable information about visitors younger than 13 years of age. If you are under the age of 13, you are expressly prohibited from accessing/viewing the Websites.  If you are the parent or guardian of a child under 13 years of age and believe that they have disclosed personally identifiable information to us, please contact us at [email protected] so that we may delete your child’s information.



We may provide links to third-party websites as a service to you or in order to provide you additional information related to the transactions and activities that occur on the Websites.   Please be aware that we cannot control and are not responsible for the information collection, use, and disclosure practices of such websites. We encourage you to review and understand the privacy practices and policies, if any, of these websites before providing any personally identifying information to them.  We are not responsible for the content or information of these websites, any products or services that may be offered through these websites, or any other use of the linked websites.



We reserve the right to revise this Privacy Policy at any time by updating this posting. Please check back regularly and to see if there have been any changes to this policy, which you can determine by reviewing the Effective Date listed below. By continuing to use the Websites after those changes become effective, you agree to be bound by the revised Privacy Policy. 



Notice to California Residents: California Civil Code Section 1798.83 permits Website users who are California residents to request and obtain from us once a year, free of charge, information about the personal information (if any) we disclosed to third parties for direct marketing purposes in the preceding calendar year. If applicable, this information would include a list of the categories of personal information that was shared and the names and addresses of all third parties with which we shared information in the immediately preceding calendar year. If you are a California resident and would like to request this information, please contact us or write to us at [email protected].


Do Not Track Notice:  Some web browsers incorporate a “Do Not Track” feature that signals to websites that you visit that you do not want to have your online activity tracked.  How browsers communicate and respond to the Do Not Track signal is not yet uniform. For this reason, like many web websites, the Websites do not currently respond to or alter their practices in response to a Do Not Track signal. Please note that third parties may collect personal information about your online activities over time and across different websites when you visit our Websites or other online websites and services. To find out more about "Do Not Track," you may wish to visit



If you have any questions or comments about this Privacy Policy, or if you would like us to update or correct information we have about you or your preferences, please contact us by email at [email protected] or by phone at 800-223-2732.  You also may write to us at:


American Parkinson Disease Association

Parkinson Plaza

135 Parkinson Avenue

Staten Island, New York 10305




This Privacy Policy is effective as of June 12, 2015.