- What personally identifiable information we collect through the Website.
- How we use the information we collect.
- With whom the information may be shared.
- The kind of procedures we employ in an effort to hinder the unauthorized access, use or disclosure of information you provide to us.
- Information related to third-party websites.
- The laws that apply to those accessing the Website.
- How you can amend the information we collect on you.
- Rights related to the European Union’s General Data Protection Regulation.
THE INFORMATION WE COLLECT
Personal Information You Provide and How It Is Used
When you visit our Website, you may provide us with personally identifying information (such as name, address, e-mail address, telephone number, and/or credit/debit card information) and other information on a voluntary basis, as more particularly described below. We do not knowingly collect sensitive information, such as Social Security numbers. Please do not send sensitive, personal or confidential information to us directly through the Website, or by email to any of the contact email addresses listed on the Website.
Processing of Payment Transactions, General Donations
Processing of Payment Transactions, Chapters
You may order certain print publications through the Website by providing your name and mailing address, and optionally providing your email address. We will use this information to send you the requested publications. We will also add your contact information to our mailing list. You may opt out of receiving future communications from us at any time by clicking the “Unsubscribe” link in any of our emails.
Ask the Doctor
When you use the “Ask the Doctor” feature, you will be asked to provide your email address, as well as your question. Our staff healthcare professionals will only use this information to respond to your questions, and we do not store this information for longer than necessary to respond to your question. This information will be destroyed after the question has been answered and is only seen by our Scientific & Medical Affairs staff. Any questions or concerns regarding your information may be sent to [email protected] Please note that our staff healthcare professionals cannot recommend treatment or make diagnoses, but can respond to general questions. We ask you not to transmit your own, or another person’s, sensitive or personal health information through this feature to us, and we encourage you to direct any specific questions to your personal physician or healthcare provider.
Sharing Your Story
We offer visitors the option to share a story related to diabetes. Although last names are not published with the story, any information about yourself or others that you write about will be publicly displayed.
When you RSVP for certain events on the Website, you will be asked to provide your name and email address, and will be provided with the option to provide your company name, mailing address, and your guest’s first and last name. We will use this information to confirm your RSVP and communicate with you regarding your attendance at the event.
If you choose to participate in a sweepstakes or other promotion (“Promotions”) offered through the Website, we may collect additional personally identifying information from you, which will be used to manage your participation in our Promotions, and may be shared with third parties, including Promotion sponsors or partners.
When you register an account, make a contribution, or take certain other actions on the Website, you will be added to our mailing list to receive occasional email updates, unless you choose to opt-out by unchecking the box next to the words “Please send me e-updates with the latest information on Parkinson’s Disease.” You may also sign up independently to join our mailing list, and we will ask you provide your email address and your name. If at any time you would like to unsubscribe from our email list, you may do so by clicking on the “unsubscribe” link located at the bottom of all our mass emails or by emailing [email protected] with “unsubscribe” in the subject heading and we will remove your name from our lists. We will act quickly to implement such requests but please note there may be time lags of up to a month to remove names from our database. To reach us offline, please contact us via mail at: APDA, 135 Parkinson Avenue, Staten Island, NY 10305.
We provide the ability for you to comment on our blogs and on other portions of the Website. In order to leave a comment on one of our blogs or on other portions of the Website, you will be required to provide your name and email address, and you will have the option to provide additional personally identifying information. We also provide the option for you to connect with us through various social media outlets and platforms, and we may promote your activities on social media by “retweeting” or “sharing” content that you choose to make available to us.
Personal and Non-Personal Information We Collect by Automated Means and How We Use It
APDA and third parties with whom we have contracted to provide services for us collect certain personal and non-personal information by automated means when you visit the Website, including when you access the Website via a mobile device. We collect this information through various means such as “cookies,” “web beacons” and IP addresses, as further explained below.
Personal information collected may include your device’s phone number, and your location information, such as the real-time geographic location of the device you use to access the Website.
Non-personal information we collect may include the numbers and frequency of visitors to the Website, pages visited and similar data, information about the devices our visitors use to access the Internet (such as the IP address and the device, browser and operating system type), URLs that refer users to our Website, dates and times of visits to our Website, actions taken on our Website (such as page views and site navigation patterns), general geographic locations (such as country and city) of our visitors, and, search terms that visitors use to reach our Website. If gathered, this data is used in the aggregate, and not in a manner that is intended to identify you personally. This type of aggregate information may be shared with third parties at any time.
Certain pages on the Website contain “web beacons” (also known as Internet tags, pixel tags and clear GIFs). These web beacons allow third parties to obtain information such as the IP address of the computer that downloaded the page on which the beacon appears, the URL of the page on which the beacon appears, the time the page containing the beacon was viewed, the type of browser used to view the page, and the information in cookies set by the third party. Web beacons also may be used to track whether you have opened an HTML email. When the email is opened, a part of the code that makes up the HTML page calls a web server to load the web beacon that then generates a record showing that the email has been viewed. Web beacons may also recognize when the email was opened, how many times it was forwarded and which URLs (links within the email) were clicked.
When you visit and interact with the Website, APDA and third parties with whom we have contracted to provide services for us may collect Internet Protocol addresses (each an “IP Address”), as well as browser type, Internet service provider (ISP), referring/exit pages, platform type, date/time stamp, and page navigation. An IP Address is a unique identifier number that certain electronic devices use to identify and to communicate with each other on the Internet; your Internet Service Provider automatically assigns an IP Address to the computer that you are using. We gather this information to track web site visitor movement in the aggregate, and to gather broad demographic information for aggregate use. Our goal in gathering this information is to learn how our customers and the public are using our service. We may use this information to enhance our Website or for other lawful purposes.
Do Not Track Notice
Some web browsers incorporate a “Do Not Track” feature that signals to websites that you visit that you do not want to have your online activity tracked. How browsers communicate and respond to the Do Not Track signal is not yet uniform. For this reason, like many websites, the Website does not currently respond to or alter practices in response to a Do Not Track signal. Please note that third parties may collect personal information about your online activities over time and across different websites when you visit our Website or other online websites and services. To find out more about “Do Not Track,” you can visit http://www.allaboutdnt.com.
HOW WE MAY SHARE YOUR INFORMATION
Unless otherwise stated herein, we do not reveal personally identifiable information about you to third parties for their independent use unless: (1) you expressly authorize APDA or an APDA affiliate to do so, (2) it is necessary to allow APDA and its service providers or agents, including but not limited to, our third-party payment processors, to provide services on APDA’s behalf, (3) it is necessary in order to provide products or services to you, (4) the information is disclosed to entities that perform marketing or data aggregation services for APDA, (5) it is necessary in connection with a sale of all or substantially all of the assets of APDA or the merger of APDA into another entity or any consolidation, share exchange, combination, reorganization, or like transaction in which APDA is not the survivor, (6) APDA is required or permitted to do so for any or all of the following reasons: (i) to comply with a subpoena, legal process, government request or any other legal obligation, (ii) to prevent, investigate, detect, or prosecute criminal offenses or attacks on the technical integrity of the Website or our network, and/or (iii) to protect the rights, privacy, property, business, or safety of APDA, its affiliates, subsidiaries, partners, directors, officers, employees, or members, visitors to the Website, or the general public.
HOW WE ATTEMPT TO SAFEGUARD YOUR INFORMATION
We do not knowingly collect, use, or disclose personally identifiable information about visitors younger than 13 years of age. If you are under the age of 13, you are expressly prohibited from accessing/viewing the Website. If you are the parent or guardian of a child under 13 years of age and believe that they have disclosed personally identifiable information to us, please contact us at [email protected] so that we may delete your child’s information.
THIRD PARTY WEBSITES
We may provide links to third-party websites as a service to you or in order to provide you additional information related to the transactions and activities that occur on the Website. Please be aware that we cannot control and are not responsible for the information collection, use, and disclosure practices of such websites. We encourage you to review and understand the privacy practices and policies, if any, of these websites before providing any personally identifying information to them. We are not responsible for the content or information of these websites, any products or services that may be offered through these websites, or any other use of the linked websites.
Notice to California Residents
California Civil Code Section 1798.83 permits Website users who are California residents to request and obtain from us once a year, free of charge, information about the personal information (if any) we disclosed to third parties for direct marketing purposes in the preceding calendar year. If applicable, this information would include a list of the categories of personal information that was shared and the names and addresses of all third parties with which we shared information in the immediately preceding calendar year. If you are a California resident and would like to request this information, please contact us or write to us at [email protected].
HOW TO CONTACT US
American Parkinson Disease Association
135 Parkinson Avenue
Staten Island, New York 10305
EUROPEAN UNION AREA, SWITZERLAND AND UNITED KINGDOM USERS
The following provisions apply only to users residing in the European Union Area (“EEA”), Switzerland and the United Kingdom.
Please note, in May of 2018 a new data privacy law known as the EU General Data Protection Regulation (“GDPR”) went into effect. Pursuant to GDPR, we are required to provide those residing in the EEA, Switzerland and the United Kingdom (hereinafter, the “EU Users”) additional information and rights related to the “Personal Data” we collect about them. We summarize such information and rights below.
HOW TO CONTACT US
PURPOSE FOR INFORMATION COLLECTION
LEGAL GROUNDS FOR PROCESSING PERSONAL DATA
APDA will process personal data that we receive from EU Users on the ground that it is in our legitimate interest for the effective administration of the Website, to fulfill and/or address your requests, or to provide the functionalities and features as further described herein.
YOUR INFORMATION AND YOUR CHOICES; WITHDRAWAL OF CONSENT
GDPR provides EU Users with additional rights in respect to the Personal Data we hold about you, including the right i) to be informed about the Personal Data we have collected, and ii) to request a copy of the Personal Data, and iii) to have your Personal Data deleted, and iv) to lodge a complaint about our processing of your Personal Data with your local supervisory authority. Upon appropriate written request we will update or amend your Personal Data, but we reserve the right to use any information previously obtained to verify your identity or take other actions that we believe are appropriate and lawful. You may access, correct, or request deletion of your Personal Data – or request that we stop any processing of your Personal Data – by contacting us at the email address listed above. We will respond to your request within a reasonable timeframe.
Please note we may need to retain certain information for record keeping purposes, and there may also be residual information that will remain within our databases and other records, which will not be removed from such locations. Additionally, there may be circumstances in which we are not legally required to comply with your request because of the laws in your jurisdiction or because of exemptions provided in data protection legislation in general, and GDPR in particular. Finally, please note that we are not responsible for removing or deleting information from the databases of third parties (such as service providers) with whom we have shared information about you, but we will make the request on your behalf for such removal/deletion.
CHILDREN’S PRIVACY/NOTE TO PARENTS OF CHILDREN RESIDING IN THE EEA, SWITZERLAND AND UNITED KINGDOM
The Website does not intentionally or knowingly collect, use, or disclose personally identifiable information about EEA visitors to our Website that are less than 16 years of age. If a child under the age of 16 submits information to us through any part of the Website and APDA becomes aware that the user submitting the information is under the age of 16, the information provided will be deleted as soon as it is discovered and not used for any purpose. If you are the parent or guardian of a child under 16 years of age and believe that they have disclosed personally identifiable information to us, please contact us at [email protected] or the mailing address below and be sure to include in your message the same user name and password and/or email address that you believe your child submitted, if applicable.
135 Parkinson Avenue
Staten Island, NY 10305